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Structural eye disease

Gene: TBC1D32

Amber List (moderate evidence)

TBC1D32 (TBC1 domain family member 32)
EnsemblGeneIds (GRCh38): ENSG00000146350
EnsemblGeneIds (GRCh37): ENSG00000146350
OMIM: 615867, Gene2Phenotype
TBC1D32 is in 12 panels

3 reviews

Achchuthan Shanmugasundram (Genomics England Curator)

Comment on phenotypes: This gene has been associated with relevant phenotypes in OMIM (MIMs #258865 & #621307) and the OMIM records were last accessed on 18 December 2025.
Created: 18 Dec 2025, 8:14 p.m. | Last Modified: 18 Dec 2025, 8:26 p.m.
Panel Version: 4.35

Nicola Ragge (Birmingham Women's and Children's NHS Foundation Hospital Trust)

I don't know

FC - I would classify the gene as AMBER, because although there is only 1 human mutation reported with this phenotype, this was found in a consanguineous family and the eye phenotype is supported by animal models (Ko et al., 2010, PubMed: 20159594)
Created: 19 Jun 2019, 3:32 p.m.

Mode of inheritance
BIALLELIC, autosomal or pseudoautosomal

Phenotypes
Orofaciodigital syndrome 9; 258865

Publications

Ivone Leong (Genomics England Curator)

I don't know

Submitted on behalf of Professor Nicola Ragge (Wessex and West Midlands GLH). FC - I would classify the gene as AMBER, because although there is only 1 human mutation reported with this phenotype, this was found in a consanguineous family and the eye phenotype is supported by animal models (Ko et al., 2010, PubMed: 20159594)
Created: 17 Apr 2019, 3:31 p.m.

Mode of inheritance
BIALLELIC, autosomal or pseudoautosomal

Phenotypes
Orofaciodigital syndrome 9; 258865

Publications

Variants in this GENE are reported as part of current diagnostic practice

Details

Mode of Inheritance
BIALLELIC, autosomal or pseudoautosomal
Sources
  • Expert Review Amber
  • NHS GMS
Phenotypes
  • Orofaciodigital syndrome IX, OMIM:258865
  • orofaciodigital syndrome IX, MONDO:0009795
  • Alsahan-Harris syndrome, OMIM:621307
  • Alsahan-Harris syndrome, MONDO:0979871
OMIM
615867
Clinvar variants
Variants in TBC1D32
Penetrance
None
Publications
Panels with this gene

History Filter Activity

18 Dec 2025, Gel status: 2

Set Phenotypes

Achchuthan Shanmugasundram (Genomics England Curator)

Phenotypes for gene: TBC1D32 were changed from Orofaciodigital syndrome IX, OMIM:258865; orofaciodigital syndrome IX, MONDO:0009795 to Orofaciodigital syndrome IX, OMIM:258865; orofaciodigital syndrome IX, MONDO:0009795; Alsahan-Harris syndrome, OMIM:621307; Alsahan-Harris syndrome, MONDO:0979871

18 Dec 2025, Gel status: 2

Set Phenotypes

Achchuthan Shanmugasundram (Genomics England Curator)

Phenotypes for gene: TBC1D32 were changed from Orofaciodigital syndrome 9, 258865 to Orofaciodigital syndrome IX, OMIM:258865; orofaciodigital syndrome IX, MONDO:0009795

18 Dec 2025, Gel status: 2

Removed Tag

Achchuthan Shanmugasundram (Genomics England Curator)

Tag gene-checked was removed from gene: TBC1D32.

7 Feb 2023, Gel status: 2

Added Tag

Achchuthan Shanmugasundram (Genomics England Curator)

Tag gene-checked tag was added to gene: TBC1D32.

22 Sep 2022, Gel status: 2

Set publications

Sarah Leigh (Genomics England Curator)

Publications for gene: TBC1D32 were set to 24285566

17 Apr 2019, Gel status: 2

Created, Added New Source, Set mode of inheritance, Set publications, Set Phenotypes

Ivone Leong (Genomics England Curator)

gene: TBC1D32 was added gene: TBC1D32 was added to Structural eye disease. Sources: NHS GMS,Expert Review Amber Mode of inheritance for gene: TBC1D32 was set to BIALLELIC, autosomal or pseudoautosomal Publications for gene: TBC1D32 were set to 24285566 Phenotypes for gene: TBC1D32 were set to Orofaciodigital syndrome 9, 258865