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Early onset or syndromic epilepsy v8.195 PGBD5 Achchuthan Shanmugasundram changed review comment from: Comment on list classification: As reviewed by Karen Stals, there are ten patients from five unrelated families reported with biallelic PGBD5 variants and neurodevelopmental disorder. Epilepsy was reported in nine of these ten patients. There is also functional evidence available in support of the association. Hence, this gene can be promoted to green rating in the next GMS update.; to: Comment on list classification: As reviewed by Karen Stals, there are ten patients from five unrelated families reported with biallelic PGBD5 variants and neurodevelopmental disorder. Epilepsy was reported in nine of these ten patients. There is also functional evidence available in support of the association. Hence, this gene can be promoted to green rating in the next GMS update.
Early onset or syndromic epilepsy v8.195 PGBD5 Achchuthan Shanmugasundram changed review comment from: Comment on list classification: As reviewed by Karen Stals, there are ten patients from five unrelated families reported with biallelic PGBD5 variants and a neurodevelopmental disorder. Epilepsy was reported in nine of these ten patients. Hence, this gene can be promoted to green rating in the next GMS update.; to: Comment on list classification: As reviewed by Karen Stals, there are ten patients from five unrelated families reported with biallelic PGBD5 variants and neurodevelopmental disorder. Epilepsy was reported in nine of these ten patients. There is also functional evidence available in support of the association. Hence, this gene can be promoted to green rating in the next GMS update.
Early onset or syndromic epilepsy v8.195 PGBD5 Achchuthan Shanmugasundram Classified gene: PGBD5 as Amber List (moderate evidence)
Early onset or syndromic epilepsy v8.195 PGBD5 Achchuthan Shanmugasundram Added comment: Comment on list classification: As reviewed by Karen Stals, there are ten patients from five unrelated families reported with biallelic PGBD5 variants and a neurodevelopmental disorder. Epilepsy was reported in nine of these ten patients. Hence, this gene can be promoted to green rating in the next GMS update.
Early onset or syndromic epilepsy v8.195 PGBD5 Achchuthan Shanmugasundram Gene: pgbd5 has been classified as Amber List (Moderate Evidence).
Early onset or syndromic epilepsy v8.194 PGBD5 Achchuthan Shanmugasundram Tag Q2_26_promote_green tag was added to gene: PGBD5.
Tag Q2_26_NHS_review tag was added to gene: PGBD5.
Early onset or syndromic epilepsy v8.194 PGBD5 Achchuthan Shanmugasundram Phenotypes for gene: PGBD5 were changed from Seizures; global developmental delay; spasticity; hypotonia to Neurodevelopmental disorder with seizures, hypotonia, and variable spasticity, OMIM:621482; neurodevelopmental disorder with seizures, hypotonia, and variable spasticity, MONDO:0980968
Early onset or syndromic epilepsy v8.193 PGBD5 Achchuthan Shanmugasundram Publications for gene: PGBD5 were set to PMID: 41533792
Early onset or syndromic epilepsy v8.192 PGBD5 Achchuthan Shanmugasundram reviewed gene: PGBD5: Rating: GREEN; Mode of pathogenicity: None; Publications: 41533792; Phenotypes: Neurodevelopmental disorder with seizures, hypotonia, and variable spasticity, OMIM:621482, neurodevelopmental disorder with seizures, hypotonia, and variable spasticity, MONDO:0980968; Mode of inheritance: BIALLELIC, autosomal or pseudoautosomal
Early onset or syndromic epilepsy v8.187 PGBD5 Karen Stals gene: PGBD5 was added
gene: PGBD5 was added to Early onset or syndromic epilepsy. Sources: Literature
Mode of inheritance for gene: PGBD5 was set to BIALLELIC, autosomal or pseudoautosomal
Publications for gene: PGBD5 were set to PMID: 41533792
Phenotypes for gene: PGBD5 were set to Seizures; global developmental delay; spasticity; hypotonia
Penetrance for gene: PGBD5 were set to Complete
Review for gene: PGBD5 was set to GREEN
gene: PGBD5 was marked as current diagnostic
Added comment: Zapater et al. 2026 PMID:41533792 report 5 families with homozygous loss of function variants in PGBD5 co-segregating in two affected siblings in each family (variants identified via whole exome sequencing). Authors show that PGBD5 contributes to normal brain development in mice and humans.
Sources: Literature