Congenital myopathy

Gene: JPH1

Amber List (moderate evidence)

JPH1 (junctophilin 1)
EnsemblGeneIds (GRCh38): ENSG00000104369
EnsemblGeneIds (GRCh37): ENSG00000104369
OMIM: 605266, Gene2Phenotype
JPH1 is in 5 panels

2 reviews

Achchuthan Shanmugasundram (Genomics England Curator)

Green List (high evidence)

Comment on list classification: There are four unrelated individuals with Congenital myopathy 25 and with biallelic JPH1 variants. Hence, this gene can be promoted to green rating in the next GMS update.
Created: 28 May 2026, 10:39 a.m. | Last Modified: 28 May 2026, 10:39 a.m.
Panel Version: 7.34
As reviewed by Anna Sarkozy, PMID:39209426 (2024) reported four unrelated patients with congenital myopathy and they had similar clinical presentation with prominent facial, ocular and bulbar features. The disease onset was in neonatal period and had hypotonia, poor feeding, cleft palate and talipes. Muscle weakness was generalised but prominent in the lower limbs with facial weakness also present. Muscle biopsy from patients showed type 1 myofiber predominance and ultrastructural analysis revealed slightly reduced triads, and structurally abnormal sarcoplasmic reticulum. Four different homozygous loss-of-function variants were reported in these patients either by whole-exome or whole-genome sequencing. JPH1 gene expression was reduced in muscle tissue from one of the patients.

This gene has been associated with relevant phenotypes in OMIM (MIM #620964, last accessed 28 May 2026) and in Gene2Phenotype (with 'moderate' confidence rating on the DD panel).
Created: 28 May 2026, 10:37 a.m. | Last Modified: 28 May 2026, 10:37 a.m.
Panel Version: 7.31

Mode of inheritance
BIALLELIC, autosomal or pseudoautosomal

Phenotypes
Congenital myopathy 25, OMIM:620964; congenital myopathy 25, MONDO:0975808

Publications

Anna Sarkozy (Great Ormond Street Hospital)

Green List (high evidence)

causes congenital myopathy with prominent facial and ocular involvement; isease onset was in the neonatal period with hypotonia, poor feeding, cleft palate and talipes. Muscle weakness was generalised but prominent in the lower limbs with facial weakness also present
Created: 22 May 2026, 1:49 p.m. | Last Modified: 22 May 2026, 1:49 p.m.
Panel Version: 7.14

Mode of inheritance
BIALLELIC, autosomal or pseudoautosomal

Publications

Details

Mode of Inheritance
BIALLELIC, autosomal or pseudoautosomal
Sources
  • Expert Review Amber
  • NHS GMS
Phenotypes
  • Congenital myopathy 25, OMIM:620964
  • congenital myopathy 25, MONDO:0975808
Tags
Q2_26_promote_green Q2_26_NHS_review
OMIM
605266
Clinvar variants
Variants in JPH1
Penetrance
None
Publications
Panels with this gene

History Filter Activity

28 May 2026, Gel status: 2

Entity classified by Genomics England curator

Achchuthan Shanmugasundram (Genomics England Curator)

Gene: jph1 has been classified as Amber List (Moderate Evidence).

28 May 2026, Gel status: 0

Set Phenotypes

Achchuthan Shanmugasundram (Genomics England Curator)

Phenotypes for gene: JPH1 were changed from to Congenital myopathy 25, OMIM:620964; congenital myopathy 25, MONDO:0975808

28 May 2026, Gel status: 0

Set publications

Achchuthan Shanmugasundram (Genomics England Curator)

Publications for gene: JPH1 were set to

28 May 2026, Gel status: 0

Added Tag, Added Tag

Achchuthan Shanmugasundram (Genomics England Curator)

Tag Q2_26_promote_green tag was added to gene: JPH1. Tag Q2_26_NHS_review tag was added to gene: JPH1.

22 May 2026, Gel status: 0

Entity classified by Genomics England curator

Arina Puzriakova (Genomics England Curator)

Gene: jph1 has been removed from the panel.

22 May 2026, Gel status: 1

Created, Added New Source, Set mode of inheritance

Arina Puzriakova (Genomics England Curator)

gene: JPH1 was added gene: JPH1 was added to Congenital myopathy. Sources: NHS GMS Mode of inheritance for gene: JPH1 was set to BIALLELIC, autosomal or pseudoautosomal