STRs in panel
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Congenital muscular dystrophy and congenital myopathy

Gene: TTN

Green List (high evidence)

TTN (titin)
EnsemblGeneIds (GRCh38): ENSG00000155657
EnsemblGeneIds (GRCh37): ENSG00000155657
OMIM: 188840, Gene2Phenotype
TTN is in 15 panels

5 reviews

Louise Daugherty (Genomics England Curator)

I don't know

Gene rating and review submitted by Rachael Mein, Viapath Guy's Hospital February 2019 on on behalf of London South GLH for the GMS Neurology specialist test group.
Created: 30 Apr 2019, 10:09 a.m.

Rachael Mein (Viapath at Guy's Hospital)

Green List (high evidence)

Mode of inheritance
BIALLELIC, autosomal or pseudoautosomal

Phenotypes
Myopathy, early-onset, with fatal cardiomyopathy 611705

Publications

Variants in this GENE are reported as part of current diagnostic practice

Anna Sarkozy (Great Ormond Street Hospital)

Green List (high evidence)

Mode of inheritance
BIALLELIC, autosomal or pseudoautosomal

Phenotypes
Myopathy, early-onset, with fatal cardiomyopathy 611705

Publications

Helen Brittain (Genomics England Curator)

I don't know

Comment when marking as ready: Cause of congenital myopathy (preceding cardiomyopathy) in >4 families in association with recessive truncating mutations
Created: 6 Feb 2017, 9:14 a.m.
Comment on phenotypes: This is the only phenotype considered appropriate for the congenital myopathy panel.
Created: 6 Feb 2017, 9:13 a.m.
Comment on mode of inheritance: Although monoallelic mutations can cause disease (predominantly cardiomyopathy) for the purposes of this panel, the appropriate phenotype is described as being caused by recessive truncating mutations (See PMIDs)
Created: 6 Feb 2017, 9:11 a.m.
Comment on list classification: 17444505 two families with recessive truncating mutations presenting with congenital / infantile myopathy. Subsequent onset of DCM in mid-childhood. 23975875 - five further individuals with recessive truncating mutations and (2/5) congenital onset myopathy.
Created: 6 Feb 2017, 9:09 a.m.
Myopathy, early onset with fatal cardiomyopathy described in association with homozygous truncating mutations in two families. AD inheritance seen in proximal myopathy with respiratory muscle involvement, however this has a later age of onset (average 35 years), therefore probably not relevant to congenital myopathy. Also well known to have a large range of missense mutations without clear pathological implication.
Created: 26 Jan 2017, 1:38 p.m.

Mode of inheritance
BOTH monoallelic and biallelic, autosomal or pseudoautosomal

Phenotypes
Myopathy, early-onset, with fatal cardiomyopathy 611705; Myopathy, proximal, with early respiratory muscle involvement 603689

Publications

Ellen McDonagh (Genomics England Curator)

From Illumina information for this gene, Hereditary Myopathy with Early Respiratory Failure and Udd Distal Myopathy have a dominant mode of inheritance, whereas Salih Myopathy is recessive.
Created: 2 Jul 2015, 2:44 p.m.

History Filter Activity

6 Feb 2023, Gel status: 3

Created, Added New Source, Set mode of inheritance, Set publications, Set Phenotypes, Set penetrance

Arina Puzriakova (Genomics England Curator)

gene: TTN was added gene: TTN was added to Congenital muscular dystrophy and congenital myopathy. Sources: UKGTN,Expert,Illumina TruGenome Clinical Sequencing Services,NHS GMS,Radboud University Medical Center, Nijmegen,Expert Review Green,London South GLH Mode of inheritance for gene: TTN was set to BIALLELIC, autosomal or pseudoautosomal Publications for gene: TTN were set to 17444505; 23975875; 28295036 Phenotypes for gene: TTN were set to Salih myopathy, OMIM:611705 Penetrance for gene: TTN were set to Complete