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Retinal disorders

Gene: POC5

Green List (high evidence)

POC5 (POC5 centriolar protein)
EnsemblGeneIds (GRCh38): ENSG00000152359
EnsemblGeneIds (GRCh37): ENSG00000152359
POC5 is in 6 panels

4 reviews

Eleanor Williams (Genomics England Curator)

Green List (high evidence)

The rating of this gene has been updated to green following NHS Genomic Medicine Service approval.
Created: 11 Mar 2026, 1:02 p.m. | Last Modified: 11 Mar 2026, 1:02 p.m.
Panel Version: 8.97

Arina Puzriakova (Genomics England Curator)

Comment on list classification: There is sufficient evidence to promote this gene to Green at the next GMS panel update.

Total of 12 families reported in PMID:40590205 and PMID:29272404 with biallelic LOF variants in the POC5 gene presenting with retinal dystrophy (11/12), diabetes mellitus (10/12), lipodystrophy (6/12), kidney disease (7/12), and muscle cramps (8/12). Ten different variants identified with two variants found in multiple unrelated families from different ethnic and geographic backgrounds. Aberrant localization of POC5 at the basal body of the cilium, provides evidence that the described syndrome is a ciliopathy. Supportive zebrafish knockdown model.
Created: 4 Aug 2025, 9:43 a.m. | Last Modified: 3 Sep 2025, 9:43 a.m.
Panel Version: 8.23

Siying Lin (Moorfields Eye Hospital)

Green List (high evidence)

PMID 40590205: 12 families with bi-allelic LoF POC5 variants (including additional phenotype information for the family initially reported in PMID 29272404) - retinal dystrophy was a clinicl feature in 11/12 affected individuals, supporting this gene as a cause of syndromic retinal dystrophy
Created: 2 Jul 2025, 8 a.m. | Last Modified: 2 Jul 2025, 8 a.m.
Panel Version: 8.6

Mode of inheritance
BIALLELIC, autosomal or pseudoautosomal

Phenotypes
Retinal dystrophy; diabetes mellitus; lipodystrophy; renal failure; abnormal muscle physiology

Publications

Mode of pathogenicity
Other

Ivone Leong (Genomics England Curator)

I don't know

Submitted on behalf of the GMS Eye specialist group. These genes are also from RetNet. There is currently not enough evidence to rate these genes Green, therefore they have been given an Amber rating.
Created: 27 Dec 2019, 9:10 a.m. | Last Modified: 27 Dec 2019, 9:10 a.m.
Panel Version: 2.5

Details

Mode of Inheritance
BIALLELIC, autosomal or pseudoautosomal
Sources
  • Expert Review Green
  • NHS GMS
  • RetNet
Phenotypes
  • Retinal dystrophy
  • diabetes mellitus
  • lipodystrophy
  • renal failure
  • abnormal muscle physiology
Tags
gene-checked
Clinvar variants
Variants in POC5
Penetrance
None
Publications
Panels with this gene

History Filter Activity

19 Mar 2026, Gel status: 3

Added Tag

Arina Puzriakova (Genomics England Curator)

Tag gene-checked tag was added to gene: POC5.

11 Mar 2026, Gel status: 3

Removed Tag, Removed Tag

Eleanor Williams (Genomics England Curator)

Tag Q3_25_promote_green was removed from gene: POC5. Tag Q3_25_NHS_review was removed from gene: POC5.

11 Mar 2026, Gel status: 3

Added New Source, Status Update

Eleanor Williams (Genomics England Curator)

Source Expert Review Green was added to POC5. Rating Changed from Amber List (moderate evidence) to Green List (high evidence)

4 Aug 2025, Gel status: 2

Entity classified by Genomics England curator

Arina Puzriakova (Genomics England Curator)

Gene: poc5 has been classified as Amber List (Moderate Evidence).

4 Aug 2025, Gel status: 2

Set Phenotypes

Arina Puzriakova (Genomics England Curator)

Phenotypes for gene: POC5 were changed from to Retinal dystrophy; diabetes mellitus; lipodystrophy; renal failure; abnormal muscle physiology

4 Aug 2025, Gel status: 2

Set publications

Arina Puzriakova (Genomics England Curator)

Publications for gene: POC5 were set to

4 Aug 2025, Gel status: 2

Set mode of inheritance

Arina Puzriakova (Genomics England Curator)

Mode of inheritance for gene: POC5 was changed from to BIALLELIC, autosomal or pseudoautosomal

4 Aug 2025, Gel status: 2

Added Tag, Added Tag

Arina Puzriakova (Genomics England Curator)

Tag Q3_25_promote_green tag was added to gene: POC5. Tag Q3_25_NHS_review tag was added to gene: POC5.

27 Dec 2019, Gel status: 2

Created, Added New Source, Set mode of inheritance

Ivone Leong (Genomics England Curator)

gene: POC5 was added gene: POC5 was added to Retinal disorders. Sources: Expert Review Amber,RetNet,NHS GMS Mode of inheritance for gene: POC5 was set to