Genes in panel

Ataxia and cerebellar anomalies - narrow panel

Gene: NEU1

Amber List (moderate evidence)

NEU1 (neuraminidase 1)
EnsemblGeneIds (GRCh38): ENSG00000204386
EnsemblGeneIds (GRCh37): ENSG00000204386
OMIM: 608272, Gene2Phenotype
NEU1 is in 15 panels

2 reviews

Arina Puzriakova (Genomics England Curator)

Comment on list classification: Biallelic variants in the NEU1 gene are associated with Sialidosis (OMIM: 256550). Both Sialidosis Type I (milder, late-onset) and Sialidosis Type II (more severe, early-onset) can present with ataxia as part of a systemic neurological condition.

Overall there are sufficient unrelated cases to warrant inclusion on this panel.
Created: 1 May 2025, 9:26 a.m. | Last Modified: 1 May 2025, 9:26 a.m.
Panel Version: 8.3

Lauren Turton (Sheffield Diagnostics Genetics Service)

Green List (high evidence)

NEU1-related sialidosis type I is a milder form of the disorder, characterised by visual defects, macular cherry-red spot, myoclonus, ataxia, and seizures. Onset can be variable from childhood to adulthood. Disorder has been well characterised for many years, with several unrelated patients reported.
Sources: NHS GMS
Created: 14 Apr 2025, 3:05 p.m.

Mode of inheritance
BIALLELIC, autosomal or pseudoautosomal

Phenotypes
Ataxia; myoclonus

Publications

Variants in this GENE are reported as part of current diagnostic practice

History Filter Activity

1 May 2025, Gel status: 2

Entity classified by Genomics England curator

Arina Puzriakova (Genomics England Curator)

Gene: neu1 has been classified as Amber List (Moderate Evidence).

1 May 2025, Gel status: 0

Added Tag, Added Tag

Arina Puzriakova (Genomics England Curator)

Tag Q2_25_ promote_green tag was added to gene: NEU1. Tag Q2_25_ NHS_review tag was added to gene: NEU1.

1 May 2025, Gel status: 0

Set Phenotypes

Arina Puzriakova (Genomics England Curator)

Phenotypes for gene: NEU1 were changed from Ataxia; myoclonus to Sialidosis, type I, OMIM:256550; Sialidosis, type II, OMIM:256550; Ataxia; Myoclonus

14 Apr 2025, Gel status: 0

Created, Added New Source, Set mode of inheritance, Set publications, Set Phenotypes

Lauren Turton (Sheffield Diagnostics Genetics Service)

gene: NEU1 was added gene: NEU1 was added to Ataxia and cerebellar anomalies - narrow panel. Sources: NHS GMS Mode of inheritance for gene: NEU1 was set to BIALLELIC, autosomal or pseudoautosomal Publications for gene: NEU1 were set to 10944856; 11063730; 32752208; 31371146; 30023283 Phenotypes for gene: NEU1 were set to Ataxia; myoclonus Review for gene: NEU1 was set to GREEN gene: NEU1 was marked as current diagnostic